The last several days have been chocked full of great information! Fortunately, this was exactly what we needed. We are gaining more confidence with every step as doors continued to be opened for Sy’s health, but we are learning that we will be forced to make MAJOR changes to our lives to have a shot at Sy’s healing. Thank you to those of you who have been praying and providing for us as we explore this new option.

So, what have we learned?

This new therapy option requires an unbelievable amount of dedication and determination before you even start anything. Do we REALLY want Sy to get better? To the point of putting almost everything on hold for it?

This therapy has been researched and proven for over 70 years. You either do it all or you don’t. The problem is that doing it all will take more time, energy, and resources than anything we’ve ever done before (this is an understatement). This is fantastic timing with my 24 hour shifts, my full-time class schedule, and my clinical schedule that is heating up.

We have learned that as our little boy walks this journey, so will the rest of our family. We have allowed Sy to live alone in his foodless world as we all indulge in whatever we want. It’s time for us to step down into his world until we all emerge together.

Here is the really amazing thing that has been in my mind as we are here: This new lifestyle and choice for health is an echo of what’s required of my faith. Do I trust Him enough to let go of everything I think is essential to allow Him refocus me on those things that have eternal value? Convenience versus my son’s health? Distractions versus leading my family? Selfishness versus selflessness? It sounds easy, but it will require more of me than I have. This is what brings me back to Him on a minute by minute basis.

Sy’s health journey has been an opportunity to watch chained doors fly open but also an opportunity to turn the hearts of my family toward something worthwhile.

I know this post has been a bit vague. We will be posting more details soon about what is coming our way.

Thanks for reading!